Hospital Notes

I finally got around to getting both my boys notes, I have had a read through them and will try to update the boys pregnancy, labour, birth and NICU journeys over the next few weeks. It's nice to finally put in some of the 'missing' information about what happened.

Some things were worse than I remember, or maybe I didn't realise how bad they were at the time? The notes were quite confronting, especially Brendan's.

It was quite easy to get the notes, I rang the hospital and they told me to write a letter and attach some proof of ID with it and they would send them out. It only took about 2-3 weeks to come through too.

Easter 2011

We started Sunday morning with an Easter Egg hunt! Both the boys loved it.













Then we went to Aunty and Uncle's place for lunch, another egg hunt and then dinner.
Was a lovely day =)

Tristan at 21months

I had Tristan weighed and measured today and I'm very pleased with how he is going =)

He is now 10.7kg, 85cms long and his HC is 47.5cms. His length is just on the 50th %ile, HC is just above the 25th %ile and his weight *drum roll* is just under the 10th %ile - the highest it's been since he was 3 months old! I'm a very pleased mummy, he is doing so well.

He now has about 15 words =D
Mum, Dad, Brendan, tractor, truck, water, rock, dora, spongebob, bye, car, Mort (the work dog), teddy and hot. 
His pronunciation is a little out... but I understand him =D

Finally! An Update!!

The past month certainly has been a test for us, but things are falling into place now and we are in a better position now. Thank you to everyone who offered support and things for my boys during our time of need. I really appreciate it all xx

Brendan is nearly 4, yep it's scaring me too, 8 days to be exact. Well 7 days and 7 hours exactly he'll be four. He's now 13.9kg and approx 104cms tall. He's now in Kindy, four half days a week (two mornings and two afternoons) he is really struggling with being left there, not that he hasn't been left before it's just he hasn't been left there before. All new kids, new teachers and an aide (which he didn't have before), can be pretty scary for any child, especially one with an ASD. He had his hearing tested today and he has improved, his left ear is now just within normal limits.... read that NORMAL, he's never been normal. His right ear is still bad though and the audiologist would like us to be sooner than June by an ENT, and is doing what she can to get that to happen. She's a gem, really brilliant with Brendan.

Tristan had his hearing tested today too, they wanted to make sure of two things, that A) he's not following Brendan's path and B) that his hearing isn't causing his speech delay. Well he is 100% perfect. PERFECT you couldn't get any better! I am not going to bother getting him weighed this month, 2 reasons... the first being I just don't have time, so many other appointments I need to clean the house at some point! The other reason being I just don't want to. He cracked 10kg last month so I feel I can breathe a little sigh of relief. Yes he might be underweight for his height but so is Brendan.

Thanks for reading
Sally
xx

Weight Updates

Had both the boys at the CHN office this morning for a quick weigh and measure.

Brendan weighs 14kg (dressed) and is roughly 104cms tall.
Tristan weighs 10.08kg and is roughly 85cms tall. Which puts him just above the 3rd %ile for weight and right up on the 75th %ile for height :o :o :o He's had a massive growth spurt! At 17 months he was 79cms and 9.66kg, at 18 months we only had his weight checked and he was 9.9kg.

Tristan has been referred on for Speech Therapy, his 18 month report showed that he was well behind for communication and he is also behind for personal-social skills. Problem solving skills are right on par for actual age. Gross motor and fine motor skills are all well above average :D

Over-all I'm not surprised, it's been coming for a while, I don't think he will need a lot of therapy... just a bit of a boost :)

Tristan Update

There isn't a whole lot to update on Tristan. His speech is coming along now, he has about 10 words (only I understand them though). He'll have a hearing test in the next 1-2 months just to make sure he isn't going to have the same problems as Brendan does with his ears. He is still on a dairy-free diet and his nappies have improved. Developmentally I have no concerns, he is doing everything I would expect from an 18 month old, plus more. He loves scribbling and is already trying to jump (nearly two-feet off the ground jumping!). His bow-legs and inward toeing are no longer a concern for me either, one leg has improved and is barely noticeable (if you didn't know you probably wouldn't pick it). The only concern I have is his lungs. He still requires ventolin, even though the warmer months are here. We've devised a plan for winter this year to hopefully stop him from getting any worse (I'm hoping as he's a year older his lungs will be better).

Tristan at 18 Months

Time sure has flown by, Tristan is now 18 months old (on 19/12), he is coming up to 17 months corrected age (on 28/12). He currently weighs in at 9.9kg Not sure on height as we didn't measure this month. He currently has 4 words and some babble noises, he can say 'bye', 'u-oh' and 'narna' (banana). I'm counting the next one as a word, for now, because it sounds like he is saying it, 'wawer' (water).

Tristan is still w-sitting, we are still working on correcting him and discouraging him from sitting like that, but he really doesn't like sitting normally! He is still walking/standing etc with his feet facing outwards, one of them is very noticeable. His bow-legs have gotten a little better over the last 2-3 months, they are not so noticeable now.

He is currently on a dairy-free diet and I am pleased with the results. He hasn't woken up during the night screaming for about 3 weeks now!!!! His eczema has almost cleared up completely and his bowels have some consistency to them, they aren't formed yet, but not too far off.

6 months until he is 2, how scary!